It's truly amazing how some tragedies make virtually no impression on the media as an example
Dementia truly for my poor wife "incomplete death"
It killed according to the stats 69,478 in the UK in 2018
No major effort to raise charitable funds for research
No support or even willingness to discuss the problem at GP level.
We are faced with a blank wall of indifference to the fate of those affected , and those who try to care for them.
Because I thought my wife was having a stroke I took her recently into hospital and she was given a CT scan
End result no evidence of stroke, progressive damage to the right hand frontal lobes of the brain worse than the last scan two years ago
Suggested action
None
Suggested help to support her?
None
Advice offered to me how to care for her
None.
Recommendation to the GP from the Hospital
None
Where is the plan we were promised into care for the vulnerable elderly?
As far as I can see, the government are doing a "cull"
Something like thirty years ago, my step father died of Alzheimer's. My mother had looked after him as long as she could, then he was admitted to a hospital, which was unusual. For much of the time since, then, she put lots of effort into various ways of getting funding to Alzheimer's Association. But at some point, they decided that local fund raising didn't amount to anything. The local group more or less disbanded and really didn't feel in the least wanted.
When my mother started to go downhill with dementia, there was still just about nothing available. They'd do a mental test and say she has problems. But they really didn't help at all. She ended up spending her last year in a private nursing home at the extreme other end of GB to me.
What changed things for her was a genuine physical disease - a liver abscess. That was treated, and she was expected (by them) to go home and look after herself. Utterly impossible. We arranged what used to be meals on wheels. Diabolical service - things like simply not turning up at all. The angst that caused was awful. She had, basically, nothing by way of help. That was why we had no choice but to get her into a home.
That is not meant as poor me - my problems are long gone. But to say that I understand something, as it related to my family, and to lament that lack of progress over the decades.